15 Mins Is All It Took

It was March 31st Everything's completely fine, but then I got a cramp in my hand, then both hands, not just cramps, cramps so intense that my fingers curled in! Then my left hand went numb, a stroke I thought, so I made my boyfriend take me to the hospital, which is only 7-8 min away & as we were driving there I could literally feel the paralization moving down my body & when we arrived I was completely paralyzed from my neck down!! " IDIOPATHIC ACUTE TRANSVERSE MYOLITIS"!! I still have no use of my right hand, not much in rt foot, and am numb(ish) from chest down. Its a feeling I can't explain!! The slightest touch can hurt so bad one moment & the next numb(ish)!! I am glad that I can now use the bathroom all by myself again, I'm a big girl!! LOL! but I have no real feelings down there so I'm freaking on that! Anyone heard of anything that might be able to help us maybe reverse some of the damage?
gimpygirl2012 gimpygirl2012
41-45, F
2 Responses Jan 11, 2013

paradigm shift time. i felt my come on 2 -3 days before i was paralyzed but from my waist down! i have recovered 80-90%. i left western meds and went another direction. i did have a great neurologist but it wasn't for me. read and follow the 'Healing Code'

I was recently diagnosed with this. It all started mid August and after checking into the ER late Sept, I am still in the hospital and will be until at least mid November. Lets correspond as the network of folks with this is very small. Thank you.