I Have Trimethylaminuria

WHEN I WAS 5 YEARS OLD I STARTED KINDERGARTEN AND WHEN PLAY TIME WAS OVER WE HAD MILK AND COOKIES, OH THE MILK HURT MY STOMACH SO BAD. I KNEW THEN I COULDNT DRINK MILK. WELL AS LIFE PROGRESSED I NOTICED THAT AROUND ME TEACHERS MADE COMMENT ABOUT SOMEONE PASSING GAS, THEN SECOND GRADE, THIRD GRADE TEACHERS WOULD MAKE ME GO TO THE BATH ROOM, THEN KIDS BEGAN TO SAY I SMELLED REAL BAD, THIS WENT ON ALL THROUGH HIGH SCHOOL, IN ADULT HOOD, LIFE BECAME UNBEARABLE, THE COMMENT PEOPLE MADE ABOUT ME MADE MY SELF ESTEEEM PLUMMET DOWNWARD AND I BECAME A HERMIT AND NEVER CAME OUT OF MY HOUSE. I CURRENTLY HAVE TMAU AND IT EXPLAINS ALL THE GAS AND THE ODOR, MY BODY IS IN BIG TROUBLE. I CANT METABOLIZE TRYMETHYLIMINE, SO I SMELL LIFE FECES, MUSTY, ODOROUS ALL DAY LONG AND I PASS GAS ALL DAY LONG, THERE IS NO CURE ONLY A FEEBLE ATTEMPT AT CONTROLLING THIS HEREDITARY CONDITION, I HAVE POSTED A VIDEO ON YOUTUBE, p://www.youtube.com/watch?v=avJmR-, MAYBE MY STORY CAN HELP OTHERS, MY EMAIL IS kemetian44@yahoo.com
kemetian kemetian
41-45
9 Responses Jul 29, 2010

I found a possible "Cure" as a lot of you would call it, or treatment.

For me, the charcoal and chlorophyll weren't working. Neither were the vitamins, TMAU diet ect.

This may 2014, I noticed a sudden change in odor that allowed me to smell myself better and my girlfriend also commented on the change of smell. This lead to us being better able to identify the problem. I prayed and asked God for guidance, I searched online for days and months. Eventually I found some information that through trial and error and massive amounts of reading lead me to a particular routine.

anyways.. this is what I do, and what I take. It takes 2 to 3 days to work but you may see results after 1 day depending on your metabolism. Here's my daily routine:

1)Only eat twice a day (saves you money, puts less strain on the body)
2)[ No snacking in between meals (because it negatively effects the smell)
3)Avoid ALL SEAFOOD, SOY, DAIRY. EGGS, SUGAR, STINKY AND FERMENTED FOODS and DRINKS (EX. FERMANETED BEANS, BEER, ECT), COULIFOUR, BROCCOLLI, BEANS (EVEN GREEN BEANS) ---------------------> AVOID THE MAJORLY KNOWN PROHIBITED TMAU FOODS side note: Avoid HOTDOGS and OLD CHICKEN AND BEEF, those always leave me with the smell of farts, I have no idea why.
Drink lots of water and try to urinate at least once every 1-2 hours. This helps the body eliminate excess toxins and leaves the body smelling fresher.
5) Have at least 1-2 bowel movements a day but I don't use laxatives (only a suppository. For me, laxatives or anything that loosens my bowels makes me smell worse. I have no idea why but hopefully this is an isolated issue to only myself. I know TMAU advises using lactulose but I have not used that and have no idea is it makes me smell or not)
6) Take 6 L-Arginine pills, 500MG each.
Take 6 L-Ornithine pills, 500MG each.
Take an antibiotic pills after each meal, 500MG each
7)Drink BOTTLED and LOW FLOURIDE WATER... my odor increased after I received a dental cleaning for the first time which included some sort of flouride treatment. Before then my teeth needed some cleaning because I had never been to a dentist but i had never had an increase in odor. also less than a year after this flouride treatment I started having heart anf cholestrol problems and back problems. Everything went heywire.. I ADVISE EVERYONE TO REDUCE OR ELIMINATE ALL FLOURIDE... There are studies showing that flouride does nothing for teeth or cavities or oral hygine. When I drink tap water (which has chlorine and flouride) the odor is worse. This is why I only drink a low level flouride bottled water. (Arrowhead bottled water)

if you don't follow at least the first 6 STEPS THIS TREATMENT WONT WORK.

I know because I did everything but step [b]7[/b] and noticed this treatment didn't work. It took me a few days to figure out that step 7 is a very important part of the treatment.

Here's the order in which you will take the pills and eat/drink.. IF YOU HAVE A JOB YOU WILL HAVE YOUR[b] FIRST MEAL BEFORE WORK and your last meal AFTER WORK. N-E-V-E-R EAT AT WORK (believe me when I say that if you do eat at work you will stink up the place and you wont be happy and neither will your boss)!!!
so before work you will have a filling but light breakfast... I have this:

-Bowl of Oatmeal (healthy)
-two pieces of toasted and bread (with some spread on top, NO BUTTER!)
-before or after eating I have a bowel movement (you have to have at least 1 bowel moment a day, solid one no runny bowels)
AFTER EATING BREAKFAST ....
-Take 3 L-Arginine pills, 500 MG each
-Take 3 L-Ornithine pills, 500 MG each
-Take ONE 500 MG Antibiotic pill

go to work and drink as much water as you can and uriniate every 1-2 hours if possible. DO NOT EAT ANY SNACKS OR DRINK ANY SODA, BECAUSE SODAS HAVE SUGAR THAT MAY CAUSE YOU TO SMELL, YOU CAN CHEW SUGAR FREE GUM AND DRINK LOW FLOURIDE OR NO FLOURIDE WATER.

COME HOME, HAVE YOUR LAST MEAL. I usually have something heavy for my last meal. Here are several examples of what I have:
-spaghetti and meat balls (dont use a lot of salt on any of your foods! excess salt isnt good for the body) with some fruit juice
-bbq ribs and mashed potatoes
-tacos (with no ONIONS, onions contain sugar and give me a bad body odor) with rice (NO BEANS)
-MeatLoaf (Again, No ONIONS! I know it makes it taste better but dont do it) with mashed potatoes
-ground beef and potaoes
-homemade burgers and baked fries (no cheese) AGAIN avoid all old beef and chicken, those leave me with a constant fart smell.
AFTER HAVING MY LAST MEAL I.......
-Take 3 L-Arginine pills, 500 MG each
-Take 3 L-Ornithine pills, 500 MG each
-Take ONE 500 MG Antibiotic pill

YOU CAN GET antibiotics at a pet store i get FISHmox or FISHflex, i and many people have used them. Good luck and GOD bless :)

<p>Im really sorry we have to go through this mine started as a third grader as well I was called to the counselor office and asked about mycare at home its been 26 years since then. My mom alway took great care of me I just didnt understand what they were talking about and my family of course cant smell me so they think Im crazy but im not. I know what I have been thourgh in my life every fight every agurment has been about my odor. yes im very stronged willed so i defend myself but inside im scared because i have no idea what im defending i cant smell myself. but ive never had any friends or a boyfriend my life is a big joke. im lonely and wish i could feel loved like everyone else but i smell so bad it seems to be worst then ever I feel hopeless all the time I pray that one day god just really send a answer to this plague no one understands i get teased all the time it hurts so bad</P>

Dear Kemetian: Black tea is the answer to your body odor and bad breath and anyone else who has TMAU!...i have been drinking black tea for a couple months and the severe body odor of feces and rotten cabbage IS GONE!...I MEAN REALLY GONE!...Something so simple has given me my life back. I drink 3 cups a day with 2 tea bags per cup of black tea and 1 teaspoon of regular sugar. I use boiled purified water. However, tap water boiled is fine to.....Also, when taking a bath pour some brewed black tea in with your bath water...usually 1 cup will do. Please let me know how this works out for you.

Hi, I'm 21 years old and I think I may have this condition. All of my family and friends can't smell me (around 5 family members and 15 friends say they can't smell it). Is it possible that so many people can't smell it and that other people can? It only seems to be guys who think that I smell like trash, fish or ****. I don't understand

Hi, I'm 21 years old and I think I may have this condition. All of my family and friends can't smell me (around 5 family members and 15 friends say they can't smell it). Is it possible that so many people can't smell it and that other people can? It only seems to be guys who think that I smell like trash, fish or ****. I don't understand

wow im just learning of this I am so glad to finally know that im not alone, I Pray to God that someone find a cure fast, living this way is horriable you feel dirty all the times, if you don't smell clean how can you feel clean expecially after taking hundreds of showers, as a woman no one wants to smell bad and you don't want no one to smell you, im very clean person and often I feel like im all alone like this is just a bad curse, I Pray to God that we all get some help soon, no one wants to live like this, GodBless you all

I feel your pain! Here is what you can do it works great for me. Start using vitamin D3 about 2000 IU a day, along with less meat and more fruits and vegetables. Also if still have lingering mild odor take PAU D ARCO, you can get it a Whole Foods. Just try it, you'll will be plesantly supprised. Good luck.

Fecal body odor has ruined my life I am 48. This has been a living nightmare a sentence from hell.

dear kemestian I also have been plague with insult all my public life,do not make the ignnorance of people.to stay homebound. I raise three children my husband swear he has never smelled me and so do many of my real friends, Stengers in the store talk about me some even joking among themselves i just totally ignore them. Thoughen up it is not you the problem is the illness.Eating only cooked vegies and fruits helps,along with onerhammonus acidophillus and one swuiss full enzymes with each meal. aim for three bowel mouvement a day.Iberogast drops from germany after every meal do the truc. OUTdoor activities are great organize boundfire,nature hickes.Enjoy your life. lindalee