This has only been a problem for me for the past 10 years. I think I've had it all my life, but because I fasted so much when I was younger (for weight control) it helped mitigate the odor. Now, that I've got healthier eating habits, this condition is ruining my life. I have had friends say they don't notice it and doctors tell me its all in my head, but at work all I hear is grousing and coughing. People assume its a soap issue, and refuse to accept that it is difficult to control. I'm working with a dietician, but reliably controlling the problem is an uphill climb. It has been tremendously isolating. And one of the least fun aspects is all the doctors who have never heard of the condition. I finally, recently saw a geneticist who at least knew of this disorder. (although I was his first patient). He has recommended copper chlorophyllin for odor control. Have you tried that yet? I tried activated charcoal, but it didn't have an impact for me. I'm also wondering about riboflavin pros and cons. I guess the other thing I'm starting to grapple with is how to find some joy in life in spite of TMAU. I think it takes tremendous courage to face the world with this condition. I wish it was physically impossible for it to occur in any person. Sometimes I feel like screaming in frustration and despair.