I'm Overwhelmed!!

I started having severe symptoms about four years ago. I was misdiagnosed numoruos times. I was put through a myriad of tests. Some of which were painful and humiliating. They all said that it was psychosymatic. I had a colonoscopy with biopsies three years ago. However, the colorectal surgean did not request that the lab test for lymphocitic colitis. I spent the following years still suffering and thinking I must be crazy!! I was finally diagnosed with microscopic ulcerative colitis. I am glad to finally have a name for my disease. They really don't know much about it. The doctors have conflicting opionions and my gastroenterologist wants to try lortronex. It can have devastating adverse reactions and could lead to having a stoma. I have tried entocort and asacol hd to no avail. I feel and am isolated in my rural community. I went to the doctor today and still have no real answers. All I really know for sure is my life is limited and my career is gone and I've been to the bathroom 17 times since 2:30 this A.M. God help me I have fleeting thoughts of giving up and giving in. Can you please, anyone give me some sort of light to look forward to?
GloriaNell GloriaNell
2 Responses May 16, 2012

I don't really know what to say, other than I am so sorry for what you are going through. Please dont give up. Hang in there. This is my first ever response since I've been on this web page. My niece who I take care of is very sick with uc. Only diagnosed 3 months ago and has had 3 blood transfusions and I'm currently watching her sleep in the hospital bed. She may require a colectomy. Look into any alternative dietary supplements. I plan on doing that once we get out of this critical stage.

I don't know anything about this disease, its prognosis, or its treatment, but I do sympathize with you. What are the symptoms exactly? Is it painful?