My Story : Medication Or Surgery ?

I was diagnosed with ulcerative colitis when I was 8 (am now 13). I have been on azathioprine to lower my immune system, and mezalazine as a control measure. l have had a few flare ups that have been solved by steroids orally or enema and have had an ongoing problem since June last year and after a visit to see my consultant yesterday have been advised that my only options are infliximab or surgery to remove my colon. It is a massive decision and I am just hoping there is someone else in a similar position to me who could perhaps give me some guidance. I have successfully managed to heal my colitis by following a diet that included drinking aloe Vera and eating very oily fish amongst other things.
Glasambyth1878 Glasambyth1878
16-17, M
3 Responses Jan 16, 2013

I would try the medication first because surgery is a huge step but if the mess don't help then look into surgery

How about shakeology! I was diagnosed at the age of 19 and now at 27 I am drinking shakeology it is a health shake that contains over 70 fruits and veggies and probiotics! Its Delicious and has kept my symptoms of UC GONE! I love not having anxiety and it has helped me become more active with my 3 year old! You need to check it out my medication was costing me 350 a month and shakeology each month is so much cheaper. please check out my website at www.myshakeology.com/kbrancheau or personally email me at beach_bodlover@yahoo.com I would love to help you out and your so young to get surgery already!

Hi I hope you are well (as can be). I know how tough this decision is as i am currently going through the exact same think however I am 22. I was diagnosed at 13 and for the last 9 years have had a constant battle with flare ups, tried every available medication and pretty much had a rough time. You are right it is a massive decision and I hope you have family and friends who support you but I understand that know quiet knows what it is like to live with ulcerative colitis or less you have it. I am waiting on my appointment to meet with surgeon although I have already made up my mind that I am going down that route. I have waisted to much of my life letting this desease control me I hope you can make a choice that is right for you : )

Thank you. I really appreciate your reply I'm not sure where about where you are, I am in the UK, so I don't know what surgery you have been offered. My consultant said it could be possible to have a pouch created. Still not sure of details yet but it makes it easier knowing that there are others out there in a similar position to me.