I am 19. I have urticaria pigmentosa, and I have as long as I can remember.
It plagues well over half of my entire body.. my chest, my neck., stomach, back and private areas.
This causes me to be highly insecure. I do not wear my hair up in a ponytail or bun in fear of being tormented or asked what is wrong with me.
I do not wear clothing that reveals too much.. and I wear foundation, all the way down to my chest to cover it up, and even still it is noticeable.

This disgusting, terrible disorder makes me very self conscious, disabling me to fulfill my dream of becoming a model.
I do not feel comfortable in my own skin. I hate being naked, even around my boyfriend.
I cannot seek help because I have been told that there is no "real" cure.
I have no health insurance, so I cannot see a specialist.
I just need help.
I want to be normal and feel good about myself.
I want perfect skin.
Please, someone help me.
sarah2615 sarah2615
1 Response May 9, 2012

Hi. <br />
Your story breaks my heart. My names Bec and I live in Brisbane Australia. I developed UP when I was 11 weeks old and had it ever since then, I'm currently 26. <br />
<br />
There isn't a cure for it, but certain food and drinks I stay away from. I still have spots covering all my body and it took me until I was about 21 to really not be so self conscious. I am getting married next week and no man ever in my life has hated my spots, frankly they don't really care about it. It's us that has the disorder that need to get over it and accept it. Easy said than done of course but little steps. <br />
<br />
If you want to email or anything re-post I'm happy to help. <br />
Bec from Brissy