I Have Urticaria Pigmentosa

Hi everyone, I just want to share my experience with this disease and hopefully people will be able to read it, relate to it, and find comfort in the fact that they are not alone.

I am 26 year old guy. I am a young professional and have just started building my career. I feel that I have everything going on for me. I travel overseas, experience and do new things, go out for drinks, eat out with friends, and spend on gadgets. I pretty much enjoy life, after all, I am in my prime years.

But a few weeks ago, my world was put to a sudden halt. My family has some history with acne vulgaris so I initially dismissed the brown spots on my body. But gradually the spots became more prevalent and they appeared all over my body: neck, thighs, back, arms. So I summoned some courage and went to see a doctor. The doctor was initially perplexed about my condition so she recommended that I undergo a skin biopsy. And so I did. A week passed and I finally got a call about the result of the biopsy. Needless to say, the wait was excruciatingly stressful. I did some rigorous research about hyperpigmentation (which is totally a BAD IDEA! Unnecessary stress will only cause more problems), and fearing for the worst: melanoma, a type of skin cancer, I fell into a state of depression. I couldn't eat, couldn't sleep and at times I just cry like a baby. I was miserable and I couldn't find light in living my life. This was during the holidays by the way. Somehow, I got out of that deep hole all because of the support my family gave me. I could not be left alone as this would trigger episodes of depression so I always had some company even when I sleep. The result came in, and I was diagnosed with Urticaria Pigmentosa. I thought to myself, wow at least its not cancer. The doctor was optimistic about my case as I have not exhibited systemic symptoms, although the spots are all over my body, but she explained to me that this condition has yet to have any cure. And so I would have to watch my diet, refrain from any physical stimuli which include exercise and massage, avoid alcohol, and take antihistamines for the rest of my life.

Yes, living with UP is very restricting. But I realized, it's all about perspective. I am still adjusting to this condition and it may be a very difficult road ahead but hey, I am just thankful that I am still alive and breathing. This disease has given me that perspective, I cherish each day, from the moment I wake up until the moment I close my eyes to sleep, and I value relationships now more than ever. I have told my family and close friends about my condition and this has not changed my relationship with them. I feel that as close as they are to you, they also have the right to know your condition because simply put, THEY CARE FOR YOU AND THEY LOVE YOU FOR WHO YOU ARE and that will not change whether you have UP or not.
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26-30, M
Jan 19, 2013