I Myalgic Encephalomyelitis
I'm here to learn.
I've had SUPPOSED debilitating fibro, that came on suddenly, since 2000. Recently, I've been learning about M.E. and apparently the two are NOT THE SAME. (See National Alliance for Myalgic Encephalomelitis website as well as www.mesite.dk and www.hfme.org)
These websites list specific blood tests and scans that can be done, as well as the patient history, to definitively diagnosis M.E.
The defining characteristics of M.E. fit me to a "t."
I have been on the Guaifenesin Protocol by Dr. R. Paul St. Amand out of southern CA (USA) since 2001. While it has definitely made a big difference in my life, I am still severely disabled (not receiving $ compensation... that's a horror story all its own.)
If you are looking for a good "fibro/cfs/m.e." support group to accompany this one, come see me at www.fibrotalk.com
