Where Else Can I Turn?Hello everyone,
My name is Michelle, I am 20 years old, and I have Lyme Disease.
The past 10 years of my life have been far from easy. At the age of 10 I developed Appendicitis, it ruptured, I developed peritonitis, and was within 2 hours of death.
Needless to say my life has just had that type of luck. This past May I tested positive for lyme but for those ten years it went misdiagnosed. In June, everything really went for the worst. My mental state reduced to that of a child, I spoke in my parent's words, "robotic but like forest gump", and the posture of my hands changed.
My doctor wouldn't call me or my parents back and basically just went "ghost" on my family and me.
I live at the very bottom of Florida and every month I have to fly up to New York with one of my parents to go to my doctors appointment (I cannot go by myself because the cognitive fog is extreme). No treatment has worked at this point. The doctor said that I have become autoimmune and he said that my thyroid is reacting to the autoimmune and killing itself. Apparently because I have the co-infections Babesia and Bartonella plus since I have been sick for years treatment is going to be difficult.
I cannot work at this time and I got denied for disability so I have no income. My parents (God bless them) have taken on payment of travel and treatment.
I cannot walk even a block anymore. I have begun losing feeling in the lower half of my body as well as my eye-lid beginning to droop. I am not going to lie and say I am not scared because I am very scared. I wonder why me? Why at the age of 20 am I having to use a cane? Why do I have to have my mom pick my legs up one by one to help me up the steps? Why can't I imagine anymore? Why do I now have permenant nerve and bone damage? Why does it have to become a struggle to see or even to get out of bed?
Dr said that in January, since no medications are working, that I will have to get a PICC line and hire a visiting home nurse. My parents for multiple years have had more than 2 or 3 jobs at once. I see what it is doing to them. I may not be able to understand a lot anymore, I may not be able to remember my childhood, my whole being may have deteriorated, but I refuse to let my parents drive themselves into the ground just because they are essentially trying to save my life and not go even further into debt.
I am reaching out to all of you and asking for your help please.
I have to fly up to NYC every month and will have to for a very long time. Costs of everything is skyrocketing. The medications I will be put on is going to cost around $3,200/month and that is only for the meds. My Insurance most likely will not cover it and IF they do they will only cover the first month of presc
Please everyone, help me, help my parents.. even if it is a $1..even if it 50 cents..I cannot express enough that I will forever be in your debt.. My gratitude and appreciation will be everlasting to all of you. What ever money is left over I plan on donating to those that have Lyme Disease and that are in need.
My fundraiser website is : www.GoFundMe.com/TheLymeFight
Once again I want to thank all of you for taking the time for this.
God bless and I will keep everyone in my prayers.