Post

Wow Were They Wrong!

well for the last 6 years i have had multiple mri's, blood work, ekg's, emg's and lumbar puncure! they had told me i had a thyroid problem, bells paulsy, and MS! i had 4 doctors tell me i had MS! well they were wrong! i got sent to UofM and within 2 visits they knew i had Myasthenia Gravis! 6 years of BS testing because they wouldnt listen to me or open their eyes! GEEZ!!!! now its just trial and error with meds to see what works for me!!!!!!!  i was told the kind of MG i have Mestinon may not work... is there anyone out there with this problem?
my symptoms:
droopy eyelid, double vision, trouble moving face muscles, trouble talking (my pallete dont move), voice change, trouble swallowing!
ashleylargent072510 ashleylargent072510 22-25, F 1 Response Mar 17, 2012

Your Response

Cancel

I can relate to this all too well. I was diagnosed at age 15, that was 11 years ago... if you ever need someone close to your age, i'm here if you need anything!..