Losing Ground And Feeling Quite Hopeless
6 years post diagnosis rheumatoid arthritis and sjogren's syndrome. I have always been independent. I was a single parent for many years, did the annual American Heart Walk, have tried to stay active and assist others as much as possible. I am really declining in my abilities lately to do all of the things that previously, I have been a champion at doing. I have become more active in reading what others have to say on the internet, and since it is becoming increasingly more difficult for me to be comfortable explaining over and over again, I find it is easier to seclude myself at home. I am on FB, and up until yesterday, had over 200 "FRIENDS" in my friend list, but yesterday, pretty much weeded that garden out, leaving just a handful and even those people, I am not convinced really give a damn but I try to have faith. I have received many requests for "reposts" on fakebook/ facebook, (same thing right?) to repost for various causes. My own sister, who does not work has several posts on her page for cancer awareness (but she knows no one who has had cancer), and for various other causes but still, cannot take one minute to repost a cause important to me. This just really burns me up. In the 6 years that I have been sick, I have never asked for anyone to do anything for me, but I have always been there for others. What does it take to get some assistance. After giving them all a piece of my mind, a "friend" posts "Gosh, if I lived closer, I would come and help you" I replied. There have been times that I have showered with a tank top on because I desperately needed a shower but was unable to raise my arms high enough to get my shirt off. I was clean, my shirt was wet, but it would dry. I don't want to take people away from their busy lives. I am only requesting a minute of their time to repost, not asking people to come and render personal care. Why is this so difficult?