My Pain Experience

I have been having symptoms of strong pain, fatigue, weakness, stiffness, dizziness and depression since 2005. They are gradually getting worse. Joint pain, hands and feet, back, hip and neck pain, shoulder pain. I really have pain all over. The intensity and location of pain changes from time to time. I've gone to many doctors but I have not received a satisfactory diagnoses. They have all kinds of theories but no concrete answer. I've been told it's sleep apnea, depression, Fibromyalgia, and arthritis among others. I wonder whether it is the beginning of MS, Lupus, Parkinson's disease or some other autoimmune disease. The worst thing is not knowing what it is and feeling that people don't believe me, that I'm just faking it. Sometimes I even doubt myself and think I'm just crazy.
davelikesfish davelikesfish
51-55, M
4 Responses Dec 12, 2012

i am so sorry, and understand the need for confirmation. Have you had the test that they do to pinpoint that area of pain? MRI shows a lot. and i know when my pain was actually seen on the report I felt better just knowing. not that it help the pain just that they know it is real. Arthritis is very painful, my back and neck is so bad, so days i never get dressed are move without walker, 50 and broke lol . if you to talk i am here. Good luck to you

What part of your body did you have an MRI? I had one about 10 years ago for my back. It showed some disc bulges but nothing too bad. Sometimes I think I should get one of my brain and see if they can find something there. I get gout sometimes in my toes and they are starting to get all crooked. I'm 55 and broke. I can't help it but I spend a lot of time wishing I was young again. But of course that's a waste of time. Thanks for taking time to talk. Good luck to you and take care.

I take cymbolta, gabipentin, ibuprofin. tramidol, oxycodine and some others. I use a C-Pap machine with oxygen for breathing at night for my sleep apnea but it doesn't help very much. The meds help somewhat but not as much as I would like.

Can life still be enjoyable with chronic pain?

It gets very depressing when I have long periods of heavy pain, dizziness, nausea, fatigue and weakness. I can't do anything and spend days in bed. But luckily I still have times when I don't feel so bad. I know that exercise should help me but sometimes, when I am in a lot of pain, I find it impossible to even move.

Your life sounds alot like my own, my meds list like yours-oxs, and then diabetes adds another list of medical problems. i get up out of bed but stay in my chair most days not even bother to fight to get dressed.
Pain has consumed my social life, no one really wants to be around a crip. my mri was on my back, shoulder and neck which all are real messed up and until i get my disability very limited to doctors.
i pray a lot, and on the days that i have good days, i do around the house as much as i can. its a hard life, and being up-beat is hard..
anytime you need to vent i am here.
seems to help when you talk to someone else going through this daily battle, and it is a battle, one that we may not win, but one we can learn to live with.