Who Gets It?
How much support do you all get form people? I find the most of the people I know forget that I have had cervical spine surgery, and had bone fusion, I have Fribro and I also have stenosis. I'm only 50 years old and sometimes feel like 80. I try SO very hard to be ok and have energy. I try to laugh and have fun, I try to not be a victim, I try to not complain. Maybe that's why I joined this site and this group. Maybe I can truly be honest and be myself, along with the pain I live with each day. My arms and hand are on fire. My face and neck are killing me. My brian is in a constant fog and all I am told is "OMG you forget everything! what's wrong with you?" This from people who know me and know what I've been through and my diagnosis. I wonder if some are right? Is this in my mind? It can't be that bad? My head has not stop hurting today. I woke up at 6am with a sever headache and still went to work and got things done. I drove an hour back home from work and now at almost 9pm my head is pounding even more All day like this? Who can manage this? I have, and still no understanding from those that say they love me. Does anyone ever feel this way? Will it ever get better? Does it?