Just Giving Up Rebif..
I con't really even remember my first Dx date.
First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --
So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did. I took if for four years and had a bad experience every time I injected... Wiped me out for a couple of days... I got where the needle didn't freak me out anymore... but then had a major relapse (from which I have not fully recovered)....
Lets try something stronger? On to Rebif ... Twice the interferon of Avonex and 3 times a week instead of one... More = Better? Got a few more years without much trouble, then in May of 08 here comes another relapse... Now I'm getting really scared. So I discuss with my Neuro...
Once upon a time I was going to take Tysabri, but it got pulled because those folks died from PML.... I was still tied up in paperwork so I never got an infusion.
I'm now in the "Washout Period" -- Which is also scary, not Rebif, no nothing... Not sure I feel much better without the Rebif... So on July 30 08 I will get my first infusion of Tysabri.
I'm getting to old to not stay aggressive with my treatment.
I'm hoping for the best - we'll see how it goes....
Hugz n Blessed Be )O(