I'm Very Open And I'll Answer Any Questions Truthfully.

Hey everyone! I've been a member of EP for only a few days, and I really enjoy reading about people's lives and sharing my own. I am 24, I live in Ontario, and I'm in a wheelchair - I have a terminal, neuromuscular disorder called Spinal Muscular Atrophy (SMA) Type 2, which causes my muscles to be very weak and gets worse over time. I have a wonderful fiance named Mike, we've been together for 9 and a half years and we are getting married next summer.
Please feel free to ask anything (except for my address and phone number), I will answer all questions, no matter how personal, truthfully and as best I can. I look forward to hearing from you!
EternalAbyss EternalAbyss
22-25, F
2 Responses Jul 17, 2010

Thank you so much! You honestly have to be the nicest person I've ever met *hugs* And thanks for the questions, it's nice to have something to answer lol :) <br />
Yes, we have SO much to do, the only thing we really have done is having picked our bridal party and possibly the place that we will have the ceremony. Our marriage was originally supposed to be this October, but we had to push it ahead because of lack of money (which we still may not have) and being so unprepared for everything. I will have the help of my mom and my best friend (my maid of honour) though, so it should be good.<br />
To answer your other question, I have to go back a little. About 6 years ago I was living in a care facility where they were supposed to be taking care of me...I won't bore you with the details of what happened, but it was a very hard time in my life and I was in a bad situation, and due to health issues I was forced to be bed-ridden and have pretty much been that way since. I get up into my chair about 3 or 4 times a year - it's really painful for me to be up so I only do it when I really need to go somewhere or do something that requires me to be, but I really want to change that. I'm already on very strong pain medications, and they help some of my regular everyday pain, but it doesn't even touch the ones I get when I'm up. When I'm in that much pain it's really hard to concentrate on anything or to enjoy myself and have a good time, but I'm in the midst of getting a new wheelchair fitted for me - a less uncomfortable one - and hopefully I can gradually get myself back into being able to be up again, and if I can do that I want to eventually go to University. All that being said, things are definately better on days where my pain is minimal. I have a lot of health problems including sleep apnea, so I often have little energy because I get little to no sleep most days, and the sleep I do get is very unrestful. So on days I have a bit more energy than a zombie, it's always better lol. Mike (my fiance) works during the day Monday to Friday, so I normally attempt sleep while he's gone, and I'm up most nights. <br />
We are moving we think sometime during this year, so when we do it will be the start of a new and better life for both of us, since we've been in a rut for a long time now. What about you, are you married? Do you have any children? What sort of things do you fill your days with? Are you happy?

Aww, thank you, you're so sweet! *big hugs* Truly my fiance is a blessing, and I am so lucky and grateful for everyone and everything I have in my life, and it only gets better when I meet people like you. You brightened my day, thank you so much again for your kind words. I wish you all the best as well, and I really hope that you get everything in life you ask for! xxoo