I Never Knew...

I had no idea I had SB-occulta. I had a lot of trouble as a child with incontinence, bladder infections, nighttime accidents, kidney infections...I had no idea. It wasn't until I was much older that I was injured at work (lower back) that they "discovered" SB-occulta. I have had a couple of spinal fusions due to that injury, so the area of the SB is well protected now. I had a great team a doctors for the second surgery, who really seemed to care about doing what was best in my situation.

Having read some of these postings, what I experienced is making some sense. I always had different urinary problems growing up, and SB was never considered as a possibility. Would it have made a difference? To me it would have. I was always made to feel that there was something so wrong with me, that it was all something that I could and should control. I was told I was "too old" to be having these problems. Realizing that I was not alone in these experiences and just being able to say it "was not within my control-I understand it now," is really helping me to have a better understanding of myself.

Thank you!

itsjustme itsjustme
31-35, F
3 Responses Feb 24, 2007

I'm 63 and knew from my 30's I had spina bifida but it never gave me any problems. My feet are very small and stubby (size 3 EE). After back pain started I wondered if it was connected to sb because I have also been incontinent for several years. After an MRI it was discovered I have a split spinal cord with tethering. This is called diastematomyelia. I will be having surgery to remove the boney spur that is tethering the spinal cord. I am hopeful that this surgery will improve or eliminate the incontinence. Have you ever been told you have a tethered cord?

I would like to know more about spina bifida. My daughter was told my granddaughter has SB. I am devastrated. She is only 10 yrs old. Why couldn't they have found it sooner? She never seemed to have a problem only way we found out is she had an acupuncturist giving her treatment for a fall she had down the stairs..he found soliosis of the spine. Then in turn my daughter took her to the pediatrician. Only to find out now she has SB. We don't know yet how bad. What is her prognosis for the future? Will she have a normal life? I have so much heart ache for what is happening to her. She is such a smart little girl.

Glad you can get some closure with this. Must take some of the sting out of it. Hope you feel better!!!